[vc_row bg_type=”image” parallax_style=”vcpb-default” bg_image_new=”id^968|url^https://wearehae.co.uk/wp-content/uploads/2018/11/Girl-without-balloon-in-green-fields_LightBlue.jpg|caption^null|alt^null|title^Girl with the red balloon stands on the field|description^null” bg_image_repeat=”no-repeat” bg_override=”ex-full” el_class=”in-grid mb-big content-container”][vc_column][vc_row_inner gap=”30″ el_class=”in-grid bg-white row-spacing-small”][vc_column_inner el_class=”plr-15-col plr-0-l”][ucaddon_image_description image=”775″ description_title=”Living with HAE” heading=”h1″ description=”If you are an HAE patient, you may have many questions with regards to daily life, such as:

‘Is it safe for me to go on holiday?’

‘Can I have children?’

'How does this affect my family?'”][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row equal_height=”yes” content_placement=”middle” el_class=”in-grid row-spacing-large plr-15″ css=”.vc_custom_1544446917856{margin-top: -170px !important;margin-bottom: -90px !important;}”][vc_column width=”7/12″ css=”.vc_custom_1544446722393{margin-top: 0px !important;}”][vc_row_inner el_class=”mb-small”][vc_column_inner css=”.vc_custom_1544446581271{margin-top: -30px !important;}”][vc_column_text el_class=”mb-tiny” css=”.vc_custom_1544446790381{margin-top: -30px !important;}”]

Family and Friends

[/vc_column_text][vc_column_text css=”.vc_custom_1544446813368{margin-top: 0px !important;}”]HAE is not contagious and is therefore not a risk to others. It is important to inform your family, friends and colleagues about your condition so that they know what they should or should not do if you have an HAE attack.

For example, so that they can correctly inform the emergency services in case you are no longer capable of doing so yourself during an episode of swelling. Make sure that they know which emergency number to call in order to contact your attending doctor or hospital.

It is best to be open about your disease so that people around you can act quickly in a panic situation.[/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_column][vc_column width=”5/12″ css=”.vc_custom_1544446728470{margin-top: 0px !important;margin-bottom: 0px !important;background-image: url(https://wearehae.co.uk/wp-content/uploads/2018/04/talk-to-your-firends.jpg?id=604) !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}” el_class=”img-container border”][/vc_column][/vc_row][vc_row gap=”30″ equal_height=”yes” content_placement=”middle” bg_type=”bg_color” bg_override=”ex-full” el_class=”in-grid plr-15 mb-big bg-primary row-spacing mb-s”][vc_column width=”5/12″ css=”.vc_custom_1544442228045{margin-top: 0px !important;background-image: url(https://wearehae.co.uk/wp-content/uploads/2018/03/working-and-studying.jpg?id=521) !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}” el_class=”img-container mb-tiny-s”][/vc_column][vc_column width=”7/12″ el_class=”mb-small-s row-spacing-col no-row-spacing-col-s”][vc_column_text el_class=”mb-tiny”]

Working and studying

[/vc_column_text][vc_column_text]You can still work and study with HAE, using the correct treatment, you will be able to live a close to normal life. That is why it is important to treat at the first signs of the attack.

If you are the parent of an HAE patient, make sure you inform the school about the condition and also ensure they know what to do in case of an attack. Work very closely with the school and provide them with all materials and information they might need in order to help your child live a full life.[/vc_column_text][/vc_column][/vc_row][vc_row gap=”30″ equal_height=”yes” content_placement=”middle” el_class=”in-grid plr-15 mb-big mb-s” css=”.vc_custom_1541663453434{margin-top: -60px !important;margin-bottom: 60px !important;}”][vc_column width=”7/12″][vc_column_text el_class=”mb-tiny”]

Pregnancy and fertility

[/vc_column_text][vc_column_text]HAE has no effect on fertility, which means if you have HAE, you have the same chances of conceiving as women without HAE.

Episodes may increase or decrease during pregnancy, it differs per person and cannot be predicted. Your doctor will closely monitor you during pregnancy and consult with you to determine which medication is most appropriate.

Remember that there are potential interactions between your medication and other medicinal products, including products that do not require a doctor’s prescription, and nutritional pregnancy supplements.

When in doubt always discuss it with your doctor.[/vc_column_text][/vc_column][vc_column width=”5/12″ css=”.vc_custom_1531743200368{background-image: url(https://wearehae.co.uk/wp-content/uploads/2018/07/HAE-girl-sea.jpg?id=777) !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}” el_class=”img-container”][/vc_column][/vc_row][vc_row gap=”30″ equal_height=”yes” bg_type=”image” parallax_style=”vcpb-vz-jquery” bg_image_new=”id^1030|url^https://wearehae.co.uk/wp-content/uploads/2018/11/lucht2-1.jpg|caption^null|alt^null|title^Girl with the red balloon stands on the field|description^null” bg_override=”ex-full” el_class=”in-grid plr-15 mb-big bg-primary row-spacing mb-s” css=”.vc_custom_1541596825020{background: #ffffff url(https://wearehae.co.uk/wp-content/uploads/2018/11/lucht2-1.jpg?id=1030) !important;}”][vc_column el_class=”mb-small-s row-spacing-col no-row-spacing-col-s”][vc_column_text el_class=”mb-tiny”]

Travelling with HAE

[/vc_column_text][vc_column_text el_class=”mb-tiny”]As an HAE patient, travelling does not need to be a limitation. Just make sure you take the proper precautions. The following is a summary of the main points of concern:[/vc_column_text][vc_row_inner gap=”30″][vc_column_inner el_class=”mb-tiny-s” width=”1/2″][vc_column_text el_class=”button”]

  • When choosing your destination, take into consideration how well you will tolerate the weather there. If you know that extreme heat can trigger an attack, for instance, visit the Canary Islands during the winter instead of the summer. If you often have problems with cold weather, it is better to avoid countries or regions that have a continental climate in the winter.
  • When travelling abroad, it is especially important that you take along a doctor’s declaration that states that it is vitally important for you to have your medication and associated materials with you in case of an emergency. Perhaps your doctor can also provide a short-written description of your disease. To avoid problems, it is important that this declaration is in English and, if necessary, the language of the country of destination.
  • Make sure that you always have enough medication and materials necessary for administering the medication to last for the duration of your trip. If necessary, contact the pharmacy of your choice prior to departure in order to obtain the materials necessary for administering the medication.
  • Always take emergency medication with you when you travel. Make sure that this medication is readily accessible by placing it in your hand luggage and not in the boot of the car or as checked luggage on an airplane.

[/vc_column_text][/vc_column_inner][vc_column_inner width=”1/2″][vc_single_image image=”545″ img_size=”full” el_class=”mb-tiny”][vc_column_text]

  • It may be necessary to keep your medication cooled, such as when you travel to hot destinations. If you do not know whether this is necessary, you can always ask your pharmacist.
  • Check in advance whether there is a hospital or doctor near your destination that is specialised in HAE so that you and your family can always take immediate action in case of an emergency. The international location of care centres, doctors and hospitals specialised in HAE can provide assistance and support during your trip. For an overview of all HAE centres around the world, go to the website of HAEi, the international patients’ association for HAE patients: http://haei.org.

[/vc_column_text][/vc_column_inner][/vc_row_inner][/vc_column][/vc_row][vc_row gap=”30″ equal_height=”yes” content_placement=”middle” bg_type=”bg_color” bg_override=”ex-full” el_class=”in-grid plr-15 mb-big row-spacing mb-s” bg_color_value=”#ccb9d9″ css=”.vc_custom_1541663258717{margin-top: -150px !important;margin-bottom: 0px !important;}”][vc_column width=”5/12″ css=”.vc_custom_1541662815952{background-image: url(https://wearehae.co.uk/wp-content/uploads/2018/03/emergency-card.jpg?id=538) !important;background-position: center !important;background-repeat: no-repeat !important;background-size: cover !important;}” el_class=”img-container mb-tiny-s”][/vc_column][vc_column width=”7/12″ el_class=”mb-small-s row-spacing-col no-row-spacing-col-s”][vc_column_text el_class=”mb-tiny”]

Medical passport

[/vc_column_text][vc_column_text]Your doctor will provide you with a medical passport, remember to carry it at all times. Keep your SOS emergency card with you, preferably somewhere where it is easy to find, such as in your wallet. This will help first-aid providers and ambulance personnel take quick and efficient measures to treat you if you have an HAE episode away from home.[/vc_column_text][/vc_column][/vc_row]